13 Dec 2005 Month Four
 |  Category: Living with Cancer

I realised after reviewing my post on Month Three, I started counting from the 16th, when we met with the oncologist and David started treatment. The diagnosis was actually Friday, August 12, otherwise known to me as Black Friday.

Month Four was another turning point in David’s health; chronically low blood counts weren’t a problem before. David had his first blood transfusion in the hospital after the wedding, but in the past two weeks he’s had multiple transfusions of blood and platelets. It’s because the cancer has worked its way into his bones and has been affecting his ability to produce healthy blood.

We have a better idea of what the doctors were trying to spare David from when they backed off on the treatment. They did warn us that efforts toward extending his quantity of life would reduce his quality of life, and right now that quality is at an all-time low.

Chemotherapy and radiation, respectively, is essentially toxicity and rays to destroy cancer cells, but it does damage surrounding cells, too. David suffered from fatigue back in September when he was getting radiation twice a day, but nothing like what he’s experiencing now.

I want to spare David his dignity so I won’t go into great detail about the side effects, but it’s comparable to going 30 rounds in a boxing ring and letting the opponent have a go at you with no resistance whatsoever on your part. Fatigue sets in when the body enters a restorative state, and all his body has the energy to do is repair itself, and nothing more.

I’ve been trying to maintain David’s caloric and nutrient intake with cases of Boost, Ensure, and whatever food he can manage to eat. He’s drinking a lot of milk, water, juice, and his kidneys seem to be working properly. (The chemotherapy/growth factor info sheets recommend lots of fluids.)

All David’s body wants to do now is sleep. He has no energy to work on his railway project or read or sit in his computer chair. (Auntie Cris, I’m taking your advice about a bell, but I haven’t been able to find one! I’ll try again tomorrow.)

There’s no radiation scheduled this week, only chemotherapy. Last Friday when David had his bloodwork done at the clinic, they said he was low on platelets, so we went to Mercy Hospital that morning. We thought he’d have radiation that day, too, but the technicians said the dose on Thursday was enough for more than a week. No wonder David feels this badly. But in his weakened state, parcelling out the radiation would probably add to his overall fatigue.

Month Four has been the hardest, I hope there’s some reprieve in the coming days.

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12 Responses
  1. Fancy says:

    A Bell? What kind, and for what purpose? I have several bells on hand and can UPS one to you if you like.

  2. Gail says:

    David can barely speak, so when he needs something, a bell would be useful, especially when I’m on another floor.

    I’ll go to the teacher supplies outlet tomorrow — of all the places to buy bells, it should be there, right?

    Erm, the bigger question: what are you doing with all these bells, Fancy??

  3. Breigh says:

    Sorry to hear things are going so badly.. hopefully it’s a case of “Things will get worse before they get better”. Give David a big hug for us and one to you! *Hug*

  4. Socar says:

    I suppose, if one is looking for a bright side, sleep is better than pain. I always try to go to sleep if I’m not well. It’s better to be oblivious, at times.

    Still, I hope David finds some more energy soon, and can get back to his trains and planes.

  5. Gerald says:

    i do hope david gets better or at least things become more manageable. i’m gutted that he cannot continue with his trains – when you’re down there’s nothing better than doing a hobbie that you love, but if it impacts on his health then it’s best not to. it’s a shame you’re both not on instant messaging or IRC as I would say hello :) I appreciate the strain of what you’re going through though. as always, my thoughts are with you both.

  6. Frits says:

    I’m hoping with you guys that David will get to enjoy life some more soon.

  7. Karl says:

    Wow, I hope he gets better soon! Get some energy back to play more Scrabble. ;)

  8. Melanie says:

    I hope you can get some help, homecare assistance or something similar to give you relief. Remember the airplane theory: first give yourself oxygen and then help someone else. Take good care of you, too.

  9. Mary Anne Gagnon says:

    Here’s hoping that today has been a better day for David. You’re doing an incredible job as his caretaker – your love for him shines through in everything you’re doing for him – I can sense that every time I read your updates. It’s good to know you’re both trying to focus outwardly on projects and hobbies at a time when it would be so easy to become mired in the negatives. Keep hoping for the best and expecting the best! I am praying for strength for you, and freedom from pain for David.

  10. Fancy says:

    You can’t even walk through a Bay store anymore these days without clerks lobbing these silly little engraved x-mas bells at you. Rod got one, I got 2, and then there are the other 2 bells from when I was sick with the flu, the cow bell which I always threated to put around Rod’s neck when in public, and finally several other small bells and tinkering toys that are surprisingly loud for their diminutive statures.

  11. Tanya says:

    Sorry to hear that things are not so good. I hope this is the bad before the good and that treatment helps.

    If there is anything you need, let us know.

  12. Gail says:

    Thanks for all your kind thoughts, everybody. The last couple of days have been absolutely the worst, we can’t wait to put them behind us.

    Tomorrow David has chemotherapy scheduled, I hope the clinic can give him more relief than what he can get from medication (the injections seem to be more effective than pills).

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